tag:blogger.com,1999:blog-785403612794750488.post3830538056174185346..comments2023-10-16T06:50:22.064-05:00Comments on Deuces Wild & An Ace in the Hole!: Compound Heterozygous MTHFR - now what?Miss Meganhttp://www.blogger.com/profile/05439601475933806357noreply@blogger.comBlogger71125tag:blogger.com,1999:blog-785403612794750488.post-19496789659248658812020-11-19T10:10:14.447-06:002020-11-19T10:10:14.447-06:00Dr. James herbal medications will cure any inch of...Dr. James herbal medications will cure any inch of your Fibroid, OK. When taken Dr. James herbal mix medicine to cure your Fibroid and any other Infertility, You must not be far from your home, because it will make you visit the restroom often in passing out the Fibroid gradually Thanks to Dr. James herbal mixed medicine for his help in shrinking off my long term uterine fibroid. I had pelvic pain, heavy menses, and swelling. I went to the hospital and was diagnosed with fibroid and advised to go for surgery. I was scared and I went online for more info and remedy for fibroid. Luckily, I found Dr. James's natural medication for fibroid. I reached out to him, and he prepared me with his herbal mix medicine for fibroid shrinking, and I used the medicine as he prescribed for me and my fibroid disappeared totally and is now a year plus since I got cured. His herbal medicine is easy to drink with no side effects.… He also specializes in providing solutions in any of these spiritual gynecology diseases affect human existence such as:<br />1 fibroid, asthma, ALL STDs, Urine tract infection<br />2 weakness of man organ<br />3 infections of all kinds (yeast infection)<br />4 blockages from the fallopian tube<br />5 cysts. From the ovaries<br />6 unpleasant smell from the vagina<br />7 irregular menstruation, menopause<br />8 infertility for easy Conception. 9. HIV/AIDS, GENITAL HERPES VIRUS, ALZHEIMER'S/DEMENTIA.<br />10.skin diseases, Toilet infection, and bad body odor……. Etc..<br />11. Watering sperm (low sperm count) is not able to get a woman pregnant.<br />Simply contact the spiritualist on (drjamesherbalmix@gmail.com) to get his Herbal Medication to cure your diseases and put yourself on a motherhood side of life.<br />(No more adoption, with DR JAMES your problem will be solved and you will have your child with ease.<br />Contact Dr. James on his Email at (drjamesherbalmix@gmail.com).your solution home! Jessica Lennonhttps://www.blogger.com/profile/09193815528085884981noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-71293897472299056742017-03-11T01:39:34.984-06:002017-03-11T01:39:34.984-06:00MTHFR specifically compound hetero and homozygous ...MTHFR specifically compound hetero and homozygous need to avoid Folic acid supplements and folic acid fortified foods as well. Recent research has shown that folic acid that we can't break down or use can actually occupy the enzymes to purge them from our systems which means the methylated folate can't be utilized as efficiently either. <br />If your OB insists on folic acid find a new OB. <br />It is very important you find an OB who is competent in MTHFR. Or find a Functional Medicine Dr who is trained in MTHFR who will tell your OB exactly how to handle this.<br />Anonymoushttps://www.blogger.com/profile/13647066490359448586noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-4192058127087185392014-06-24T13:31:10.550-05:002014-06-24T13:31:10.550-05:00Hi! I love the way you have laid our the MTHFr inf...Hi! I love the way you have laid our the MTHFr info here. I was diagnosed as compound heterozygous in 2010 as part of a thromobosis panel prior to a breast reduction surgery. Before my diagnoses, I had 10 years of B/C pills and then 2 successful, uneventful pregnancies. Since the diagnosis, I have also been diagnosed with PCOS and after a rocky year trying to conceive, because I am normally anovulatory, we went on to have a 3rd successful and uneventful pregnancy.I am currently pregnant with baby #4, 16 weeks tomorrow. Still I have yet to experience the normal "symptoms" of the MTHFr. I had my homocysteine tested once before my surgery and it was 7. Which is in the normal range. <br />My question is, I have recently changed from a folic acid supplement to a high does 5-MTHF supplement, and have been experiencing fatigue, headaches, and acne. I first wrote this off as a pregnancy thing, but after a bit of research have found that it could possibly be from too much of the bioavailable 5-MTHF. Have you heard anything about a recommended dose, or dealt with a dosage too high? Caseyhttps://www.blogger.com/profile/12493700251069720841noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-34206866092056356442014-06-16T15:08:14.692-05:002014-06-16T15:08:14.692-05:00I'm so glad I found this. My hubby and I have ...I'm so glad I found this. My hubby and I have been TTC for almost 4 years with two early miscarriages. I just got blood work back that I'm compound heterozygous. My fertility Dr said a lot of doctors don't think it is a big deal, but he does. He has me on folgard, baby aspirin and coq10, plus I take a prenantal. We meet with him this Friday to discuss my results. What questions should I ask him? I hope this is the answer. I have seen things about an increased risk for autism, downs, and others...would that level be back at normal if I'm being treated for the problem? Anonymoushttps://www.blogger.com/profile/06800681424307756730noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-84946231816428985682014-05-29T18:11:56.938-05:002014-05-29T18:11:56.938-05:00Thank you again. I am hopeful and your story gives...Thank you again. I am hopeful and your story gives me additional hope. I just checked and with my Dec 2012 baby, I started Neevo beg of Feb'12 and conceived beg of April'12 and had a healthy and happy pregnancy :) Thanks again for all this information and your support.Hoping againhttps://www.blogger.com/profile/13048371310844629485noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-4232082653166116202014-05-29T15:53:13.334-05:002014-05-29T15:53:13.334-05:00Yes, I think that would be fine. Going off my pers...Yes, I think that would be fine. Going off my personal experience, I started on Neevo about a month before my last IVF cycle/transfer, and we got pregnant with the girls that month and carried to term....so I think a month or more of Neevo is probably adequate. Definitely start when you can. Again, just going off my experience, it seemed to be the difference for me between miscarrying or not =). Good luck in your TTC journey! Miss Meganhttps://www.blogger.com/profile/05439601475933806357noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-37735588298527475872014-05-29T15:48:46.387-05:002014-05-29T15:48:46.387-05:00Thank you so much for a quick response Megan. I am...Thank you so much for a quick response Megan. I am getting a prescription for Neevo DHA again but just started taking Vitafol Ultra since the local pharmacy couldn't supply Neevo but I can get that ordered via mail. We are hoping ttc again from August onwards so in your opinion taking Neevo for a few months is going to be enough while ttc. I will continue to take it if I become pregnant of course. I will be asking my doctor the same question but wondering what your thoughts are on it. In other words, how long does it take for these vitamins to be effective and really work?Hoping againhttps://www.blogger.com/profile/13048371310844629485noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-56505540755408623532014-05-29T15:48:05.181-05:002014-05-29T15:48:05.181-05:00This comment has been removed by the author.Hoping againhttps://www.blogger.com/profile/13048371310844629485noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-50556569465165883822014-05-29T14:54:43.269-05:002014-05-29T14:54:43.269-05:00I still take the Neevo and baby aspirin every day,...I still take the Neevo and baby aspirin every day, even though I'm not pregnant. It should help protect against stroke, DVT, etc.. My OB told me that I would need to take both every day for the rest of my life. It's expensive, but I do feel better when I take the Neevo vs not. =). Good luck!Miss Meganhttps://www.blogger.com/profile/05439601475933806357noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-13170300372907165962014-05-29T14:44:48.748-05:002014-05-29T14:44:48.748-05:00Ashe -
I'm sorry, I don't have any experi...Ashe - <br />I'm sorry, I don't have any experience from childhood. Thank God, my children haven't had any issues (yet) from the MTHFR. I would advocate like crazy for her! Don't stop until you find a provider who will listen. I have asked multiple pediatricians and they know nothing about MTHFR and really don't think it is a big deal at all. I think that is simply unacceptable. If nothing else, I would be asking the pediatrician about supplementing the metabolized form of folic acid, just like they do for adults. This should help solve the problem if MTHFR is the only issue. The only problem is, there's no dosing indication for children...so it would be hard to know what dose she needs. I can't help but think that the metabolize folic acid would help...the trade name is Deplin. It is used for several purposes, one of which is an adjunct to antidepressant therapy...hence they express using it with extreme caution in children. Something has got to help her! I am so sorry you are going through this with her! Please keep us updated! Miss Meganhttps://www.blogger.com/profile/05439601475933806357noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-81128185071178939772014-05-29T14:38:39.000-05:002014-05-29T14:38:39.000-05:00Hoping again - So sorry for your loss! I would ab...Hoping again - So sorry for your loss! I would absolutely go back on the Neevo! After I delivered my daughters I didn't refill my Neevo and I got pregnant on my own (!!!) but miscarried at about 6 weeks. I got back on the Neevo and 7 months later got pregnant again and carried to term. I can't guarantee that it was the Neevo, but I miscarried each pregnancy before I started taking Neevo, and I miscarried after I stopped taking Neevo, but never once miscarried while I was actively taking it. If I were you I would seriously consider going back on it! I know it is expensive, but it is so worth it! I still take Neevo and baby aspirin every day and I am not pregnant (but am still nursing my almost two year old). It is protective against other things as well...decreases your chances of stroke, DVT, etc...my OB told me I have to be on both the Neevo (or other form of the metabolized folic acid) and baby aspirin for the rest of my life, so that's what I'm doing! Good luck!!!Miss Meganhttps://www.blogger.com/profile/05439601475933806357noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-13401868864762090842014-05-29T14:09:36.370-05:002014-05-29T14:09:36.370-05:00Thank you for posting this information. It gives m...Thank you for posting this information. It gives me a lot of hope and I have at least read this 3 times over :) Also, thank you so much for any input you can offer. So here is my story ...<br /><br />I had 3 MCs back in 2011, one at home naturally @5 weeks and the other two @7 weeks or so. I went through D&C twice in which the tissue was send out for testing and they found chromosomal abnormalities both times around. Upon further testing, I was found to have 2 mutations of MTHFR (Compound heterozgous A1298C + C677T MTHFR mutation). My OBGYN told me to take 4mg of Folic Acid, any brand of Prenatals and Baby Aspirin when I get pregnant again. <br /><br />I researched a lot online on this condition and found that some women have success with taking NEEVO prenatals which has Folic Acid in the form of methylfolate. Long story short, I got a prescription for NEEVO DHA and took that throughout my only pregnancy that was a success (LO born on 12/11/12). Now, fast forward to last few month we started trying again and I wasn't really sure if the medication made a difference so I was just taking regular multivitamins. I just had another MC last week and I am so lost and heartbroken. I now wonder if I need to go back to my NEEVO or some other special prenatals for us to have a successful pregnancy. I will discuss this with my doctor next week but at the same time not sure if she has enough knowledge on this since she never prescribed anything special other than extra Folic Acid and Baby Aspirin. <br /><br />I was wondering which medications have you been taken to treat this condition. Is there any advice/suggestions you can offer? I look forward to hearing back from you.Hoping againhttps://www.blogger.com/profile/13048371310844629485noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-39456511511109784112014-05-22T16:45:46.946-05:002014-05-22T16:45:46.946-05:00My grand child is compound heterozygous since 3 mo...My grand child is compound heterozygous since 3 months of age. Dr blowing me off, she has multiple (20 +) diagnosis and Dr acts as if nothing is wrong. Diagnosis include recurrent DVT, portal vein thrombosis, migraines. ...need help.....have you or anyone reading this had any problems from childhood? Ashehttps://www.blogger.com/profile/09998210676506017887noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-82085107314895893432014-05-22T16:28:19.993-05:002014-05-22T16:28:19.993-05:00My grand child is compound .....any problems when ...My grand child is compound .....any problems when you were young?Ashehttps://www.blogger.com/profile/09998210676506017887noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-42482593928129392902014-05-12T05:37:06.494-05:002014-05-12T05:37:06.494-05:00Jarrow B Right B Complex has the folate form of fo...Jarrow B Right B Complex has the folate form of folic acid and the methylcobalamin form of B12, as well as the Pyridoxal 5 Phosphate form of B6. queenbeetv88https://www.blogger.com/profile/17162930578546480313noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-60357181551620809832014-04-12T11:11:25.569-05:002014-04-12T11:11:25.569-05:00my frustration is that I never was encouraged to f...my frustration is that I never was encouraged to find out why I lost a baby at week 20! Doctor told me that if we conceived we would again since it took us 3 years after that miscarriage to conceive again and were getting worried that we wouldn't. We later went on to have two other children. Third child reacted to MMR vaccination Ive recently read that MTHFR's can have a negative reaction to the metals in that vaccination! Frustrated because that was about the time in the news they were showing slight connection with vaccinations and autism. My son change irreversibly from that point. He is a high functioning autistic or ADD kid. Pick your poison. Very frustrated not knowing this in my youth, and child bearing years. If I'd known that I am compound heterozygous I would have learned more and proceeded more cautiously.Tracyhttps://www.blogger.com/profile/07881167619065053480noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-60269529634673071602014-01-07T13:20:30.375-06:002014-01-07T13:20:30.375-06:00I have MTHFR and am compound heterozygous. I had a...I have MTHFR and am compound heterozygous. I had a successful pregnancy early in life followed by 3 miscarriages in the second trimester. Finally 16 years later after many tests and a wonderful OB I gave birth to my second son. My 1st son has no issues while my second son has autism. He is extremely high functioning and I wouldn't change him or the fact that I had him. I didn't have all of this wonderful information about MTHFR or the treatments back then. Having a baby is the most wonderful thing and I pray you all have happy, healthy babies. Please research all medications and the affects they may have on your unborn babies. Best wishes to you all!Anonymoushttps://www.blogger.com/profile/12678652588269339066noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-15374046921252074912013-10-23T17:36:54.301-05:002013-10-23T17:36:54.301-05:00Oh Angel! SO sorry for your losses!
I would seco...Oh Angel! SO sorry for your losses! <br />I would second Dr. Doherty in Omaha for anyone who is trying to get pregnant. We too used Maud for our sweet girls.=) The only negative we found with Maud was that she totally didn't buy into my MTHFR issues. She told me testing was unnecessary, but then also refused to treat me for it once I got the results back confirming I was compound heterozygous. She wouldn't even write me a script for Neevo, and advised me against taking baby aspirin. All of the testing and treatment came from my OB, Dr. Jorge Sotolongo with Metro OB/GYN. Maud can get you pregnant, and she's amazingly good at that, but she wasn't good at keeping me pregnant...just my experience of course. I started seeing my OB immediately after confirming pregnancies, and would follow up with both my OB and Maud, until week 12 when Maud would refer back to the OB. There's such a need for OB's or other specialists that actually understand and can treat MTHFR. I have my annual exam coming up and hope to talk to my OB about long term expectations and recommendations for MTHFR and see what his thoughts are. I've tried talking to my pediatrician as well about the effects of MTHFR on my kids, and he has no idea what I am even talking about and is sure that it will have no effect on my children....so, I'm on the pedi search too if anyone knows of a good one! LOL!<br />I am curious though Angel...they couldn't do any hormone replacement therapy because of the MTHFR? Dumb question of the day perhaps, but why?Miss Meganhttps://www.blogger.com/profile/05439601475933806357noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-70771478444496176392013-10-23T15:44:53.882-05:002013-10-23T15:44:53.882-05:00Hi Heather, I'm from near Omaha. I had a chil...Hi Heather, I'm from near Omaha. I had a child born at 24 weeks who only lived for 10 days and 12 miscarriages before I finally had my two kiddos. I went to Dr. Maud Doherty for both of my children in 1996 thru 2000. I have had several friends go to her with much success as well. I know I wouldn't have children without her, I can't say enough good things about her. <br />I had a hysterectomy when I was 27 due to recurrent endometriosis and it wasn't until several years later when I was trying new Hormone Replacement Therapy that the Dr I was going to tested me for this and told me I had I had the MTHFR mutation the Dr said she couldn't help me because I had it and sent me on my way. I've been trying to find a Dr. to help with this and my early menopause issues due to the hysterectomy, what a pain. I would love to here any recommendations for Drs in Omaha as well. Positively Angelhttps://www.blogger.com/profile/11638368120702957853noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-4233369128108634072013-09-04T23:07:01.279-05:002013-09-04T23:07:01.279-05:00Hi, I was diagnosed with MTHFR Mutation: Compound ...Hi, I was diagnosed with MTHFR Mutation: Compound Heterozygote during my pregnancy. I didn't have a miscarriage, but my baby had Gastroschisis (born with intestines on the outside of belly). I was just curious if you thought I should be taking anything for this since I am no longer pregnant and what I should take. I was on Metanx during my pregnancy, but insurance wouldn't cover it because it wasn't life threatening so I stopped taking it after my son was born. Anonymoushttps://www.blogger.com/profile/14518558080605976814noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-45166223700399555012013-08-02T12:15:06.317-05:002013-08-02T12:15:06.317-05:00So happy to have found this blog. I am currently g...So happy to have found this blog. I am currently going through insurance appeals for testing for MTHFR, Factor V and Factor II... which is how I found this blog. I had three early losses in 12 months (no successful pregnancies). Got tested after the third since insurance "requires" this and despite waiting for that third loss, now I am being billed for those three tests $935 dollars later. <br /><br />I ended up having the MTHFR mutation- I am hypercoagulable. I am currently on baby aspirin, B complex, 1 mg of folate (which I am waiting to hear from OB if I should really be on 5 MTHF or Folic acid as I am seeing on many blogs and research that extra folic acid is not helpful with MTHFR), and a prenatal vitamin. What a journey this has been so far... very frustrating! Anonymoushttps://www.blogger.com/profile/07689797532034975174noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-54941706373627682472013-07-13T20:59:52.631-05:002013-07-13T20:59:52.631-05:00Heather, I'm so sorry for your losses! I sent ...Heather, I'm so sorry for your losses! I sent you an email, please let me know if you don't receive it! Hugs!Miss Meganhttps://www.blogger.com/profile/05439601475933806357noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-23173186150888731672013-07-13T15:52:43.991-05:002013-07-13T15:52:43.991-05:00I am reading this with tears in my eyes!! I was di...I am reading this with tears in my eyes!! I was diagnosed with the compound hetero mutations last year after my 3rd miscarriage. This one was at 17 weeks and we were devastated. My OB referred me to a hematologist but he didn't seem to think it was a big deal! I would love to have another baby. I am in Omaha and would love to hear what doctors you would recommend!!! please contact me if you can. hlake78@hotmail.comHeatherhttps://www.blogger.com/profile/06999317138672363813noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-5094014247733925452013-06-06T01:02:45.313-05:002013-06-06T01:02:45.313-05:00Thanks for writing about this. Ive had 3 miscarria...Thanks for writing about this. Ive had 3 miscarriages and my doctor is about to test my thyroid, mthfr,progesterone. Ive tested with 23andme and it says I am homozygous for C677T. I am going to ask my OB about NeevoDHA , I think that would be a great substitute for my prenatal and I would also take a baby aspirin as well as progesterone if I need it. Were taking a little break seeing as Ive had 3 miscarriages in 7months and my body and mind need a rest. Im taking this time to do testing and prepare my body the best I can for my next pregnancy.NFaziohttps://www.blogger.com/profile/00374479438055603075noreply@blogger.comtag:blogger.com,1999:blog-785403612794750488.post-42918507108927107632013-05-25T16:01:18.579-05:002013-05-25T16:01:18.579-05:00Hi Tascher - Yes, I would like to have all three o...Hi Tascher - Yes, I would like to have all three of my peanuts tested. The pediatrician previously didn't think it was necessary, but I disagree. We switched pediatricians this year, so I will ask him his thoughts when we go in in a couple of weeks =).<br />Did you decide whether or not to test your little ladies?Miss Meganhttps://www.blogger.com/profile/05439601475933806357noreply@blogger.com